Sunday, April 7, 2013

Twins are 12 days old/ Derek's Health

Can't believe my babies are 12 days old already. Where has time gone?!? I know people have said how exhausting having one baby can be, but two is possibly a nightmare... Although they are very much loved! They say the first 6 months to a year with twins is a big blur and now I know why. There is very little sleep when you have to meet the demands of two different newborns. The only thing that keeps you going is seeing their precious faces at 3 a.m and that gives you the energy to keep pushing through the next day.
So much has happened since the day babies arrived. Adjusting to the new lifestyle and also adjusting to news of Derek's health. The day after babies were born he spent the day at the U of I hospital doing testing and scans since he got a positive white blood cell test back for Anca. After much testing and anxiously (scarily) waiting the results, we learned that Derek has Wegener's Disease (not Wagner's). We weren't sure of the severity as worst case could lead to death if it reaches kidneys and lungs. The whole week babies and I were in the hospital was very scary not knowing the outcome of things . After x rays and scans we learned that it has only affected the face so far. They are watching him closely to make sure he doesn't lose vision in his left eye as it keeps getting wonky. This disease can cause blindness and is a possibility for him if not careful. Starting this month he will be undergoing infusion treatments at the chemo center to help try and put things back into remission. We are hoping this all works out so he can just be medicated to maintain his health and enjoy life a little more with babies. He has been struggling every day to feel good and even get out of bed at times. Going to work is a great challenge, but he does what he can. We are unsure if what the future holds with this, but are hopeful that things will get better. For now, we hold on tight an are in for the ride.. I will try and keep things together with the help of others for the days Derek will be ill and unable to help out or work. No time to panic, but to keep strong and move forward!

For now, I am going to enjoy my family we have finally been blessed with and sleep as much as possible!

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